Sunday, February 19, 2012

In a mansion, for 100 days in Hawaii

Soon after Andrea learned that CF is a fatal disease she asked several questions. She was only eight years old and the questions weren't really related to dying from CF. They were more reassuring types of questions, like...

  • Everyone has to die someday, right? Yes.
  • Don't flowers and trees and animals die too? Yes.
  • People die of all different kinds of things, right? Yes

Yes was my response to most of her questions. I thought it was great that she was concentrating on how others will go through death too because that's how life is; whether you have CF or not — you're born, you live, you die. She's always been a pretty optimistic girl even when it comes to death.

But the one question I got that I've come to think about almost daily and that I also answered yes to was...

  • When they find a cure for CF can we go to Hawaii for 100 days and live in a mansion? YES!

How could I not say yes to that? And now I find myself wondering..."how am I going to afford 100 days in a Hawaii, let alone in a mansion in Hawaii!?! What a dilemma to have, right? :)

I went to see the movie The Descendants, which is filmed in Hawaii. I really didn't know what the movie was about. It's about all sorts of things actually, but the main focus was about the death of someone (I'm trying not to spoil the movie for anyone, that's why I'm being vague). I cried a lot watching that movie. I mean I cried A LOT...enough that I couldn't keep up with the tears so I just let them roll down my check, into my neck and into the collar of my shirt. And I was thinking, "Why am I crying so hard? Yes, parts of this movie are tear-jerkers, but come on Susie...get a hold of yourself." Then it dawned on me...

I was also crying tears of joy!

Watching the beautiful scenery of Hawaii I kept thinking about that one question Andrea asked...and I couldn't help but weep happliy. That feeling that we could possible have the cure in Andrea's live time is a powerful feeling. A feeling so overwhelming I couldn't help but cry and cry hard.

And so I'm back to wondering — how in the heck am I going to pay for this 100 day trip to Hawaii???

You think this one will do?


  1. I'll help you pay for it... and of course - I will come with! :)

  2. Of course you would come with! Duh!!! :)